Pilot a PHR

Janie Appleseed Network has announced a new pilot program to teach families how to use personal health record technology.

This pilot program will engage families in the use and development of an emerging class of health information technology systems aimed at giving consumers sovereignty over their personal health data. A personal health record system, or PHR, is a digital computer application that helps a consumer store and manage personal health data captured over time. A PHR helps a person collect and use past information to inform present and future health and care choices.

Patient empowerment is being touted as an important part of U.S. healthcare reform. For example, the 21st Century Cures Act (Cures Act), signed into law on December 13, 2016, is designed to help accelerate medical product development and innovation in healthcare. It elevates the importance of “real world evidence” and creates a way to apply useful and timely information used from observational studies, patient input, and anecdotal data so that healthcare can become more of a learning health system.

New “value-based care” payment models compensate providers for managing a patient’s health (fee-for-value) rather than providing care (fee-for-service). The goal is better health for individuals and reduced spending.

In 2018, Janie Appleseed Network will introduce approximately 30 families in the state of Rhode Island to this new type of PHR technology. Families will be selected from six different cohorts:

  1. Families with a new baby born after January 1, 2018 and before June 30, 2018,
  2. Families caring for a child with special needs,
  3. Families caring for an elderly parent,
  4. Families with a family member with a chronic disease,
  5. Families with a family member with substance addiction challenges,
  6. Families with no major health issues and actively focused on staying healthy.

One family member will be enrolled in the program and be trained to enable use of the PHR technology within the entire family. The program enrollee will attend a technology training “boot camp” and then attend monthly feedback sessions to report on her or his experience using the PHR technology within the family. The subscription service for the PHR technology, called MyPHD Wellness Manager, will be provided to participating families at no charge during the pilot.

The Janie Appleseed Network pilot program begins January 1, 2018 and runs for a full year. Applications are being accepted in October and November, 2017. Selected participants will be notified this December. If you are interested in having your family participate in the pilot, click the button below.